Are you a BCBA or an RBT? Join The New Golden Steps ABA Fellowship Program
See Open Roles
We do not have a commercial relationship with any of these companies and have not otherwise been endorsed by, are not affiliated with, and do not intend to suggest a connection to, any of the companies listed on the page.

Autistic Young Adults: Navigating Life with Autism

Explore how autism young adults navigate life, from employment challenges to essential life skills development.
Table of contents
Open Table of Contents

Transitioning to Adulthood

The transition into adulthood can be a challenging time for anyone. For autistic young adults, this period can present unique difficulties and obstacles. The journey from adolescence into adult life often involves navigating complex systems of support and services, which can be particularly challenging for those with autism.

Challenges Post-High School

Graduating students with disabilities often face what's known as the 'services cliff'. This term refers to the sudden cessation of special education services and the variation in eligibility rules across states. The disruption in the continuity of needed services post-high school can cause significant problems for autistic young adults [1].

This transition period can be especially challenging, given the shift from a structured school environment to the more fluid demands of adult life. The loss of familiar support networks and the need to manage new responsibilities can be overwhelming. The 'services cliff' can further exacerbate these challenges, as autistic young adults may struggle to access the necessary support and resources to navigate this critical life stage successfully.

Independence Skills Development

As autistic young adults navigate the transition into adulthood, independence skills development becomes vital. These skills are essential for enhancing their ability to navigate home, school, and the community. By introducing these skills early and progressing methodically, individuals with autism can develop the necessary tools for increased independence throughout their lives [2].

Independence skills can cover a broad range of abilities, from self-care and domestic tasks to financial management and employment skills. The development of these skills can help to mitigate the challenges associated with the 'services cliff' by equipping autistic young adults with the abilities needed to manage their lives more independently.

Structured training programs, individualized support, and practical learning opportunities can be effective strategies for fostering these skills. With the right support and resources, autistic young adults can successfully navigate the transition into adulthood and lead fulfilling, independent lives.

Employment and Autism

The transition from adolescence to adulthood can be particularly challenging for individuals with autism. One area where these challenges are evident is in the realm of employment.

High Unemployment Rate

Recent studies have shown that up to 85% of adults with autism are unemployed, indicating a high unemployment rate among individuals with autism. This staggering statistic is further confirmed by data published by the Office for National Statistics in 2021, which shows that only 22% of autistic adults are in any kind of employment.

Less than one-third of autistic adults were reported to be in full or part-time work, based on surveys conducted by the National Autistic Society. These statistics underscore the importance of tailored employment programs for autistic individuals.

Employment Status Percentage (%)
Full or Part-Time Work Less than 33
Any Kind of Employment 22
Unemployed Up to 85

Workplace Challenges

The high unemployment rate among individuals with autism can be attributed to various factors. One of the main reasons is the lack of understanding and accommodations in the workplace [3].

Autistic individuals often face challenges with communication and social interaction, which can hinder their ability to navigate the hiring process and succeed in traditional job interviews. This can lead to a lack of job opportunities and long-term unemployment.

Additionally, the COVID-19 pandemic has disproportionately affected individuals with autism in terms of employment. The shift to remote work can be challenging for individuals with autism who may struggle with communication and social interaction. The pandemic has also led to a decrease in job opportunities overall [3].

Despite these obstacles, over 75% of unemployed autistic individuals have expressed a desire to work, indicating a strong motivation to be a part of the workforce [4]. This highlights the urgent need for support in helping autistic adults find and maintain employment.

The National Autistic Society emphasized the necessity for clear actions in both the forthcoming autism strategy and national disability strategy to address and close the autism employment gap, especially in the aftermath of the coronavirus pandemic, aiming for improved understanding and support for autistic job seekers and employees.

Impact of COVID-19

The COVID-19 pandemic has left an indelible impact on various aspects of life globally, with a significant effect on the employment sector. This impact has been particularly pronounced for autistic young adults, introducing unique challenges and changes in job prospects.

Employment Disparities

The pandemic has disproportionately affected individuals with autism in terms of employment due to the shift to remote work. This new work model can be challenging for individuals with autism who may struggle with communication and social interaction. In addition, the pandemic has led to a decrease in job opportunities overall, exacerbating the difficulties faced by autistic individuals in the job market.

Moreover, the National Autistic Society has highlighted the urgency of clear actions in the forthcoming autism strategy and national disability strategy to address and close the autism employment gap. This is especially crucial in the aftermath of the coronavirus pandemic, with a focus on improved understanding and support for autistic job seekers and employees [4].

Job Opportunities

Despite the overall decrease in job opportunities due to the pandemic, certain job types may present viable opportunities for individuals with autism. Fields such as information technology, engineering, accounting/finance, and art/design may be a good fit for individuals with autism based on their unique strengths and abilities.

The current pandemic situation has highlighted the need for increased understanding and support for autistic individuals in the workforce. This includes addressing the employment gap and providing tailored strategies for job seekers and employees [5].

The impact of COVID-19 on the employment landscape for autistic young adults underscores the importance of concerted efforts to address these disparities. As we navigate through these challenges, it's crucial to continue advocating for the rights and needs of autistic individuals in the workforce.

Life Skills Development

As autistic young adults navigate the transition from adolescence to adulthood, the development of life skills becomes increasingly imperative. These skills, integral to increased independence at home, school, and in the community, are introduced early and built upon gradually. Achievement in these areas enhances self-esteem, leading to greater happiness in various aspects of life.

Importance of Life Skills

Life skills, also known as independent living skills or daily living skills, encompass activities such as self-care, cooking, money management, shopping, room organization, and transportation. These skills are cultivated over time, starting at a very young age and progressing through adolescence and adulthood.

Individuals with autism exhibit different levels of independence, with some being able to live on their own with minimal external support, while others may require around-the-clock assistance. Commencing the development of life skills at a young age can have a significant impact as they grow older, contributing to their ability to navigate the world with greater self-reliance [6].

Teaching Strategies

Teaching life skills to autistic young adults requires innovative, tailored strategies that accommodate their unique learning needs. Visual supports, like graphic schedules and checklists, can aid individuals with autism in learning life skills more effectively. For instance, breaking down daily routines into smaller tasks can facilitate learning and following through on tasks with increased independence.

The transition from school to adult life involves learning and practicing various life skills in natural environments relevant to where the individual will live and utilize them. Life skills classes, independent living programs, and hands-on instructions are common methods of teaching these skills. Each of these methodologies is designed to promote the practical application of skills in real-world settings, enhancing the ability of autistic young adults to navigate their daily lives with increased independence and confidence.

By fostering the development of these essential life skills, we empower autistic young adults to lead fuller, more independent lives. This crucial aspect of the transition to adulthood plays a significant role in the overall quality of life for this demographic, underscoring the importance of early intervention and continued support in promoting the independence and well-being of autistic individuals.

Behavioral Challenges

Navigating life with autism comes with unique behavioral challenges, especially when transitioning to adulthood. These challenges often revolve around social interaction difficulties and the need for specific supports in the workplace.

Social Interaction Difficulties

Autistic young adults, even those with lower support needs, often experience differences that set them apart from their neurotypical peers. Sensory overload is a common phenomenon, making sensory experiences such as noise, crowds, bright lights, strong tastes, smells, and being touched, unbearable. This can make social environments challenging to navigate and may contribute to anxiety and isolation.

Alongside sensory differences, understanding and responding to social cues can also be a challenge. Autistic individuals might have difficulty interpreting body language, recognizing social cues, and controlling emotions in social contexts. This can pose significant barriers to making friends, finding and keeping a job, and dating [7].

It's crucial to note that labeling autistic individuals as "high-functioning" can often lead to overlooking significant needs. It is preferred to describe people in terms of their support needs rather than function [7].

Employment Support Needs

Given the social interaction difficulties and sensory sensitivities, autistic young adults often require unique supports in the workplace. These supports can range from accommodations for sensory sensitivities, such as a quiet workspace, to social support and understanding from colleagues and superiors.

Furthermore, anxiety, depression, and other mental health conditions are common in people with autism. They are more likely to be diagnosed with a mood disorder than the general population. This underscores the need for mental health support in the workplace, including access to counseling services and understanding from employers about potential mental health needs.

Addressing these behavioral challenges is key to empowering autistic young adults to navigate life with autism effectively. By understanding and addressing these social and employment support needs, we can create a more inclusive and supportive society for autistic individuals.

Statistics and Data

An essential part of understanding the challenges faced by autistic young adults is being aware of the relevant statistics and data. In this section, we'll delve into the prevalence of Autism Spectrum Disorder (ASD) in the United States and analyze the disparities in employment among this population.

Prevalence in the US

Autism is not an uncommon condition. According to the CDC, an estimated 5,437,988 adults in the United States—roughly 2.21% of the adult population—have Autism Spectrum Disorder (ASD). The data also reveals a higher prevalence of ASD in men than in women, aligning with estimates of ASD in US school-aged children.

Number of Adults Percentage of Adult Population
ASD Prevalence in the US 5,437,988 2.21%

Employment Disparities Analysis

Despite the substantial number of autistic adults, their representation in the workforce is significantly low. As reported by the National Autistic Society, only 22% of autistic adults are in any type of employment. This figure is even lower than previously suggested by surveys conducted by the same organization, which stated that less than a third of autistic adults were in full or part-time work.

Percentage
Autistic Adults in Employment 22%

This employment disparity is not due to a lack of desire to work. Over 75% of unemployed autistic individuals expressed a strong motivation to be part of the workforce. However, the high unemployment rate—up to 85% according to Golden Steps ABA—indicates various challenges, such as the lack of understanding and accommodations in the workplace, and difficulties in traditional job interviews due to communication and social interaction challenges.

Percentage
Unemployed Autistic Adults Desiring to Work 75%
Unemployment Rate Among Autistic Adults up to 85%

The COVID-19 pandemic has further exacerbated these employment disparities, with the shift to remote work and overall decrease in job opportunities disproportionately affecting individuals with autism. Despite these challenges, certain job types, such as information technology, engineering, accounting/finance, and art/design, may be a good fit for individuals with autism, leveraging on their unique strengths and abilities. The need for clear actions to address and close the autism employment gap has never been more critical. As the National Autistic Society emphasizes, strategies to improve understanding and support for autistic job seekers and employees are a necessity.

References

[1]: https://iacc.hhs.gov/resources/transition/

[2]: https://www.autismspeaks.org/tool-kit-excerpt/ten-ways-build-independence

[3]: https://goldenstepsaba.one/resources/autism-unemployment-rate

[4]: https://www.autism.org.uk/what-we-do/news/new-data-on-the-autism-employment-gap

[6]: https://www.autismspeaks.org/life-skills-and-autism

[7]: https://www.verywellhealth.com/why-high-functioning-autism-is-so-challenging-259951

Continue Reading